Breast Cancer Registers

Since 2000, as part of The New Zealand Breast Cancer Foundation's ‘Research for Life ‘ Programme, The Foundation has provided significant funding - over $2.5 million - to the development and on-going management of four New Zealand regional Breast Cancer Patient Registers: Auckland, Waikato, Christchurch and Wellington.

The four regional registers began collecting data:

•    Auckland - 1 June 2000
•    Waikato - 1 January 2005
•    Christchurch - 15 June 2009
•    Wellington - 1 January 2010

Breast Cancer Patient Registers Consolidation

The Breast Cancer Patient Registers (Auckland: which covers Waitemata, Auckland and Counties Manukau DHBs, Waikato, Wellington: Wairarapa, Capital & Coast, Hutt Valley DHBs, and Christchurch: Canterbury District Health Board), collect approximately 63% of all New Zealand breast cancer registrations (around 1600 per annum).

The New Zealand Breast Cancer Foundation is leading and funding a project to consolidate the regional registers into a single, modern, web-based platform that will add significant value towards future-proofing these valuable datasets. The new platform will make it easier for data to be made available to clinicians for clinical decision-making and review of outcomes, standards of treatment, scientific research and audits. The ultimate vision of collecting these data is to drive improvements in our treatment and care of breast cancer in New Zealand.    

Dendrite Clinical Systems Ltd. (United Kingdom), was selected to develop the IT platform which will be securely stored at the Ministry of Health IT platform alongside similar clinical registries. Patient data will remain confidential and coded to ensure details are not identifiable. The partnership has been a collaboration between the NZ Breast Cancer Foundation, MOH and the National Health IT Board.  

For more information on the NZBCR including the Participant Information Sheet (Patient Brochure) please contact the regional data manager for your area (details below) or contact the NZBCF at 0800 BCNurse.

Why Does New Zealand Need A National Breast Cancer Patient Register (Database)?
New Zealand needs a national breast cancer patient register because breast cancer is a significant health issue for New Zealand women. It is the leading cause of cancer deaths for women. Maori women are almost 50% more likely to die from their cancer than non-Maori and all New Zealand women have a higher death rate from breast cancer when compared to other countries such as Canada, the United States and Australia. Alarmingly, New Zealand's breast cancer death rate is 20% higher than Australia's.

What Is The Purpose Of A Breast Cancer Register?
A breast cancer register allows us to have a greater understanding of the nature of breast cancer and its treatment in New Zealand women. It records detailed information about diagnosis, treatment and outcomes of patients with breast cancer within New Zealand. For example, the information tells us how well patients do on different treatments and what treatments are most successful. As Gavin Harris, a Specalist Pathologist in Christchurch highlights, "breast cancer registers help to improve the management and treatment of current and future NZ breast cancer patients".

How Do We Do This?
The current regional registers are computerised databases where the information is entered and stored in a confidential manner. Each group has governance controlling the use and release of information. 

Both public and private sector breast cancer patients are eligible to participate in the regional registers; however, participation is voluntary and participants do have the right to opt out of the register if they wish. . 

90-95% of patients consent to their details being included in a register. Participants are followed up each year to monitor how they are doing following their breast cancer diagnosis. All registers include patients with invasive breast cancer and DCIS (ductal carcinoma in situ - a pre-invasive cancer).

For Further Information:

Auckland Breast Cancer Register:

For detailed information and analysis of the data collected to date, click on the links below:

Auckland Breast Cancer Register Main Poster 2000 - 2012 data (PDF 784KB)

Auckland Breast Cancer Register - 2000 - 2012 Age data (PDF 417KB)

Auckland Breast Cancer Register - 2000 - 2012 Ethnicity data (PDF 426KB)

Auckland Breast Cancer Register - 2000 - 2012 In Situ data (PDF 425KB)

Auckland Breast Cancer Register - 2000 - 2012 Presentation and Detection data (PDF 437KB)

Auckland Breast Cancer Register - 2000 - 2012 Survival data (PDF 588KB)

Waikato Breast Cancer Register:
For detailed information and analysis of the data collected to date, click on the links below:
Breast Cancer Features of Waikato Women Poster 2005-2008 data (PDF, 5.8Mb)
Breast Cancer Treatments for Waikato Women Poster 2005-2008 data (PDF, 2.6Mb) 
Waikato Breast Cancer Register Presentation 2005-2008 data (PDF, 90 KB)

Contact Details for Auckland, Waikato, Christchurch and Wellington Registers


Troydyn Raturaga, Lead Data Manager
Auckland Breast Cancer Study Group
Building 4, Level 6, Rm 64-166
Greenlane Clinical Centre
Private Bag 92189
Auckland 1142
Ph: (09) 630 9943 Ext 26730
Fax: (09) 631 0730


Rachel Shirley | Breast Cancer Register Co-ordinator
Waikato Breast Cancer Trust, 
Hockin Building, 
Waikato Hospital Campus, 
Private Bag 3200 
Hamilton 3240 NZ
Ph +64 7 8398726 Ext 97503
Fax +64 7 8343657

Val Davey, Coordinator
Christchurch Breast Cancer Patient Register
Dept of General Surgery
Christchurch Hospital
Private Bag 4710
Christchurch 8140
Physical Address:
245 Antigua Street
Christchurch Hospital
Ph: (03) 378 6389

Kelley Barrett, Data Manager
Wellington Regional Breast Cancer Study Group
Clinical Trials Unit, Level 8, Ward Support Block,
Wellington Hospital

Ph: 04 918 5114